Monday, December 29, 2014

Day 26 Update

Sam got his fourth dose of Erythromycin at 6:00 A.M. yesterday morning, and he started back on Pedialyte at 5ml/hour at 7:00.  After tolerating that well for six hours, he was bumped up to 10ml/hour for six hours.  Since he tolerated that well, they switched to breastmilk at about 10:00 P.M. last night.  At rounds this morning, the doctor okayed upping the rate to 15ml/hour, and he has been tolerating that well since 11:00 A.M. today!  The plan is to increase by 5ml/hour every twelve hours until he gets to 25 or 30ml/hour, which was normal for him pre-surgery.  He was taking 90ml (3 ounces) every three hours, which is 30ml/hour.  Once he tolerates that well, we can try giving him a bottle. 

His labs that check for infection are continuing to trend back to normal range.  They are gradually switching his medications from IV form to oral, which is also good news since he will go home on a few. Yesterday, the doctor mentioned going home for the first time!  He tested negative for rhinovirus last Monday, and they checked again today--they have to get two negatives before he is considered virus-free. We haven't gotten the results back yet, but once we do, they'll move him to a new sanitized room, the nurses no longer have to wear gowns and masks in his room, and he can move to the general pediatric floor!

All the steristrips are off Sam's incision and the spots where the drainage tubes were, and he looks so good!

In other news, we went to the Perot Museum of Nature and Science yesterday. It is so cool for kids and adults!  Some of the exhibits were more appropriate for elementary-aged kids, but the girls loved it anyway. 

They got to play on the leap frogs outside. 

They played on the outdoor instruments. 

And they watched their first 3D movie--neither one cared for keeping the glasses on and were more interested in the folding chairs and eating popcorn. 

When they left yesterday, both girls asked to go home. It broke my heart!  Hopefully that was the last time we have to say goodbye. 

Today, Stephen and I went to Pluckers to watch the A&M bowl game. 

We're hoping and praying for continued steady progress for our precious little guy!

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